I've been sick for more than a decade. I have struggled to keep working for as much of that as I can, even starting my own computer maintenance business, but I have spent a lot of time unable to work. A few years ago I claimed Disability Living Allowance as I had mobility problems and needed care. I was initially turned down and although I eventually won on appeal the process took more than a year.
That was awarded for two years from the date that I first applied and so it soon ran out and required a fresh application. Unfortunately I was too ill to face completing the fifty page form, collecting medical evidence and going through the medical check again and since I was working, I let it go despite being entitled to it.
In August 2010 I became seriously ill once again and eventually in October 2011 I accepted that I wasn't going to improve any time soon and so I applied for DLA again. This time I received help from the Worcester branch of the DIAL network who asked me questions and filled in my forms for me. The process was still long and exhausting but at least it got done. A few days ago I heard that I had been awarded DLA with a high rate mobility allowance and middle rate care allowance for a period of five years. I was taken by surprise about this as other people with M.E. often have to take their application to appeal.
DLA will make a huge difference to my life. The first thing I did was use the 17 weeks of backdated DLA to pay off my credit card, which had been racking up debt because of the extra costs of living with my illness. Last week I ordered a car from the Motability scheme, which I will pay for by handing over all of my DLA mobility allowance - about £50 per week - for the duration of the three year lease. Having a car will mean that I can leave the house - which I rarely leave at all apart from to go to medical appointments - and I will be able to go shopping with my wife, collect my own medicines from the pharmacy, visit the doctor and the hospital without having to take my father out of work to drive me there, and visit friends who I can only talk to over the telephone or internet at the moment. This car will open up a whole new life for me.
In addition to the car my DLA will pay for things like pre-prepared food that I can access when my wife is unable to be at home to care for me, and to cover the costs of the more expensive specific foods that I need if I am to keep my meals down. It will also pay for extra energy costs for the hot baths that I need to get some pain relief in my aching burning muscles, and air conditioning when the summer heat makes me so ill that I collapse.
In short, my DLA will be life-changing. The government's plans to replace it under the welfare reform bill and cut 20% of the cost by withholding it from people that desperately need it are a dangerous and heartless thing. Please,sign the petition to pause the welfare reform bill
Steven's blog: http://www.latentexistence.me.uk/dla-story/