I have complex interactive disabilities eg. chronic seizures, vertigo (believe me severe dizziness does not touch the descrption!), Chronic Anxiety Disorder including Agrophobia & obsessions, Clinical depression.. The list goes on..
I have relapsed after 8 yrs coping in the depression & anxiety areas which has knocked on.. Just getting crisis support... families & friends v worried...
Started checking reforms cos so scared for my self... Now i'm scared & full of care for all of us & fear of being punished is just too bad... & This is not about sympathy because our courage at times astounds me...
Now i've emailed MP for 1st time in life, with report.. I tweeted, shared links etc on Monday from bed & settee.. Got more ill thru day.. still exhausted, off my head, bent double with back,arm, hand pain, numb legs, dissociating etc..
Very difficult to know where tipping line is & doing best..
I have to say i'm proud for someone like me, who is very afraid now of government, to email & join twitter is no small thing.. you could say i'm facing my fears but i feel like a rabbit shouting to the hounds & it really is devastating!....
Will I stop? Can I stop? Where do I draw the line on legitimate bed/sofa activism & being overwhelmed by 'unbelievable' 'reforms' & being ignored by Govt.. very scary or legitimate paranoia?!
As just 1 tiny example the change to PiP removes supervision for danger & no longer includes night seizure... these seizures are some of most dangerous for me Have led to partial status epilecticus,,, which means serial seizures... i can take weeks to recover & from some i never have properly...
I started to receive DLA 9 yrs ago depite being entiltled all my life without knowing.. it changed everything for me including my attitude towards myself & to telling others of my sickness & diabilities & i use towards a low rent & transport etc.. Back into the abyss i'm on the edge of again, without it! Importantly I want to say thankyou to all my country people who have contributed to my DLA support for 9yrs.. I have never taken it for granted & I do not believe all our country wants this to go ahead... they just do not know about properly!
I support the Spartacus Report & a pause to the imminent abolishing of DLA in light of this very diturbing research which has overwhelming support..
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